Autism, Healing, and Hope

Wow, it's working!

2011-08-06T22:56:00.001-04:00

Well, we started using the tickets today. I was really expecting a lot of pushback when we limited Michael's computer time. But, he really surprised me by asking me what he could do to earn extra tickets! It was great.

One thing that we did was try to teach him how to vacuum. I never realized how much motor planning there is in such a 'simple' job. I think he's going to get it, but it's painful to watch. I know he learns his own way, so I don't want to step in too much. But wow.. it's hard. On the plus side, he was great at carrying the chairs in and out of the kitchen. His OT likes him doing heavy work, and this definitely counted!

My favorite moment of the night was right before bedtime. He had two ticket left, and he wanted to use both of them before bed. He was most of the way through the first half hour on the computer when he turned around and asked if he could change his mind and save the other ticket for tomorrow. It was so sweet! Of course we let him, and now he has a ticket to look forward to in the morning.

I think I'm going to like this program!

More Accountable Kid....

2011-07-28T20:43:00.001-04:00

I'm really impressed with this program so far. Michael is really taking ownership of his board, and moving his tasks from one peg to the next. Today he actually asked me to help him with his music task.

I am thinking that maybe his routines weren't as obvious to him as they were to us. For me, it's just expected that you get up, get dressed, brush your teeth, etc., and then you get to play. For him, I am guessing that the list of things to do seemed arbitrary. Now, he knows exactly what we expect from him and he can do it mostly independently. Win for everyone!

And, tomorrow is the last day of summer school! Then we get to enjoy August and relax a bit. Between a family trip and day camp, it's going to be an exciting month!

Accountable Kids, Day One!

2011-07-25T08:34:00.001-04:00

So, we started the Accountable Kids program with Michael this morning. He had seen the task board with his name on it over the weekend and was very curious about what it was and how it worked. Last night I walked him through all his reminder cards and showed him how he could flip over each card as he finished a task. I explained that this was a way for him to know exactly what he needed to do before he could play. He seemed curious and excited about it, so I had high hopes for this morning.

Michael had trouble sleeping last night, so he had a hard time waking up this morning. But, he came downstairs, looked at his board, saw which cards he could flip over right away, and gave me a big smile. Before I knew what was going on, he had rushed off to brush his teeth so he could flip that card, too. I didn't have to say a word! It still took him a little time to get through breakfast, but he ate it all and then asked if we could wait for the bus outside. This has to have been the smoothest morning we've had in ages!

I know it's only the first day of the program, and I'm not doing everything we're supposed to - I am at a complete loss for how to use the tickets with Michael. He sees all the pegs on the board and wants to know what they are all for. He did seem interested in finding out more about the date cards and the tickets, so I'll have to come up with something.

So, for day one, we're off to a great start. I can't wait to see what happens next!

How did it get to be summer?

2011-07-11T09:38:00.003-04:00

We are getting ready to try a bunch of new things with Michael this summer, and I realized I haven't posted in a while. Life has been incredibly busy, but I really need to be able to get my thoughts out, so here goes operation blog reboot!

Michael is in summer school for the month of July. On one hand, I feel bad that he doesn't get to do all the typical kid summer things, but on the other, the consistency is so good for him. And, I'm hoping that I can use this month and next to try to introduce a little more structure in home life. I'm evaluating a couple different approaches, and will let you know what we decide!

For now, the biggest new thing is that we've signed Michael up for swimming lessons. He loves the water, but it scares me so much that he can't swim. I hear stories so often of kids on the spectrum wandering and drowning. We still participate with Project Lifesaver, but drowning can happen so fast.

So, there was a groupon for 4 classes, and the teacher has some experience with kids on the spectrum. I just hope it goes well! At the end of the four weeks, we'll have to decide if we want to continue or not, so I have my fingers crossed.

Big Wows and Book Bucks

2011-06-05T12:25:00.003-04:00

It's hard to believe the changes we've been seeing in Michael lately. On Friday, he was able to go on a school field trip and fully participate, even though he didn't know everyone. He actually raised his hand and answered questions. Before, I would have been terrified that he would get overwhelmed by all the stimulation and get into trouble or run away. I never expect to get glowing reports on field trip days. I could get used to this!

Michael has been willing to read to me for a while now, but he has never expressed any interest in doing the 'book bucks' journal for school. Basically, he has to keep a log of what he reads, and write a one sentence summary for each entry. Today, we read the first chapter of 'The Mystery of the Stolen Sword'. When I gently broached the subject of filling out the journal entry, he was all excited and happy.

Admitedly, his sentence was not the most compelling summary of what he read, but it did indicate that he understood what he read, and who the characters are. He even told me that we'd fill in another line when we read the next chapter. What happened next is what floored me. He went to the table of contents to see that there were ten chapters. Then he told me we would need to read two books to fill out the whole form. I was shocked not at the math, but that he was looking ahead and tacitly agreeing to fill in the whole journal.

We've been seeing so many high days, the low ones still catch me off guard. But, thankfully, they are fewer and far between. Yes, I am grinning from ear to ear.

LDN and mB12

2011-04-27T17:35:00.002-04:00

We started Michael on LDN right around the first of the year. Then, mid-March, we started mb12 shots. The changes we've seen in him since combining the two are amazing. His communication skills have really improved; in the complexity of language, but also in his understanding of conversation.

Even better than the language gains are the changes in behavior. He's so much more flexible than he ever has been. He understands that plans change, sometimes without anything we can do about it. He participated in one song at his school's spring concert (before he couldn't be in the room at all). He is enjoying playing with peers and talking on the phone. Some days I look at this sweet, flexible kid and wonder where he came from.

It's one thing for me to see the changes. I'm his Mom and will always pick out the best. But, we've gotten unsolicated comments from school about how he's more interactive and sociabile. He has had ONE 'incident' at school since he started the mB12. Prior to that, we were hearing from an administrator or behaviorist several times a week. It's almost like they've lost our number!

Even though there are a lot of 'big' changes, the ones that mean the most to me are small, day-to-day things. I was actually able to walk to the grocery store with Michael, buy what we needed, and walk back home. All without any fussing. Before, there would have been mandatory time staring at the doors open and close. We would have had to walk up and down all the aisles. There would be a melt-down where we had to abandon the cart and leave. I can't describe how liberating it was to do something so simple.

Not every day is perfect, but every day is slightly better than the one before. And, I can't ask for anything more than that!

Happy New Year!

2011-01-01T16:02:00.002-05:00

I have a good feeling about 2011. I'm sure I've said it before, but this year just feels right. Maybe it has something to do with Kim mentioning that 11 is the Angel's number, or just a general optimism. No matter the reason, I'm going to run with it.

I'm sad to see winter break come to an end, but so excited at all the new beginnings. Michael has made such tremendous progress lately - he is expressing himself better, playing more, and just seems happier. All the things that I would wish for him.

So, I am going to be open to blessings from anywhere, and pray for a wonderful year!

Our very first chapter book!!

2010-12-30T11:27:00.002-05:00

Michael actually read an entire chapter book to me! In two sittings, no less! He loves the kindle so much... I can bump up the font size so it's easy for him to read. So, we read the first book in the Magic Treehouse series. I'm hoping we can read the next one soon. It has to be his idea, but I'm hoping to drop a few hints.

When I was growing up, I always had my nose in a book. It was my way of escaping into my own little world. I really want Michael to be able to enjoy books as much as I always have. So, baby steps and maybe we'll get there. Who knows, maybe he'll need his own Kindle one day.

It was a Merry Christmas!

2010-12-28T19:14:00.002-05:00

This was the best Christmas since Michael was diagnosed with autism. The first year he actually cared about opening presents, and was truly thankful for the ones he got. I was so happy for him and proud of him at the same time.

I constantly hear people talking about their kids only caring about Santa and presents, and I have to admit that I was jealous. Michael has always enjoyed spending time with family, and even understands all the players in the Nativity. I am grateful for that, since those truly are the most important aspects of Christmas. But, Santa and presents are such a part of being a kid that I hated him missing out.

He still got overwhelmed quickly with all the presents (my family is very generous!) and the activity associated with a family event. But, it was so great when he volunteered to 'be Santa' and pass out the presents. I was amazed when he was able to read names on packages and undersand that to Mom from me meant Grandma, and Joan meant Aunt Joan, etc. I was so happy, and so proud!

So, we ended up binging home a few unwrapped presents because he just couldn't handle opening them in PA, but they are all opened now. He has two big boxes left from Santa that came to our house. He wants to wait to open them until he's had time to play with some of the other toys. That counts as self-regulation, right? If only I had some of that!

Catching Up

2010-12-22T08:53:00.002-05:00

There have been a few things I've been wanting to do for months now - post to the blog more often, buy a Kindle, and read Kim Stagliano's book, All I Can Handle : I'm No Mother Teresa: A Life Raising Three Daughters with Autism. So, I'm finally catching up!

My new kindle arrived late last night. Who knew UPS delivered until 9pm during the holidays? I had been anxiously awaiting it's arrival, so I have to admit I was a little less than happy to wait so long. I guess patience has never been a strong suit of mine.

Anyway, it arrived and I tore into it. Before I could even figure out how to turn it on, Michael was in my lap asking a ton of questions. Was it a computer? What's a book reader? Does it really have books inside? I told him I needed to buy a book and he scooched over an inch or two so I could move my hands.

The very first book I bought was Kim's. I'd been wanting to read it since it came out, but I really wanted to wait for the Kindle. Now I had it, and the book was downloading. I was finally happy and excited.

You might know that Michael hates to read out loud to us. Absoulutely refuses to do it unless it's forced homework. Last night, he read the first three pages of the book out loud to me and Steve. I was laughing at Kim and crying with joy to hear Michael read to us. (It was rather surreal to have him read a book to us about dealing with autism, but if I focus too much on that point, my head will explode.)

After he decided he had read enough he wanted to know what other books we could read on it. I told him I didn't know since I had just gotten it. I think he inherited that lack of patience from somewhere. This morning, the first thing he did was ask about the Kindle. I told him we could look at it more after school today. Who knows, maybe this can be the start of us reading together again. I can't tell you how happy that would make me.

As for Kim's book, it's everything I was expecting it to be - funny, charming, and right on point. It is so nice to read her book and 'get' every word on every page. I know her life is vastly more complicated than mine, but she makes me feel like I have a sister up north. If you haven't read the book, I'd highly recommend it.

Now, enough blogging, I have a book to finish!

Holiday Recipes

2010-11-27T09:00:00.005-05:00

For Thanksgiving we decided to experiment with a new recipe for cornbread, and then cornbread stuffing. Both worked wonderfully! The cornbread actually tasted as good as any 'regular' cornbread I've ever had. Steve liked the stuffing so much that he wants to make more. That's never happened! So, here are the two recipes. If you try them, let me know how it works out?

Holiday Corn Bread
1 cup GF Flour - Baking Mix
1 cup corn meal
½ cup sugar
4 tsp baking powder
¾ tsp salt
1 tsp xanthan gum
1 tsp honey
1 cup milk substitute w/ 1 tsp lemon juice
1 tbsp egg replacer with 1/3 cup milk
1/3 cup Earth Balance SF margarine

Whisk together all dry ingredients in mixer. Add remaining ingredients and blend together on low until combined. Beat 10-30 seconds on medium/high speed until smooth and fluffy. Do not overbeat. Pour into a greased 9 inch square baking pan. Bake at 425 degrees for 20-25 minutes until golden brown and a toothpick comes out clean.

Holiday Cornbread Stuffing
1 recipe cornbread, cut into small pieces
1 medium onion, diced
Olive Oil
2 lb loose sausage
2 tsp sea salt
1 tsp garlic powder
½ tsp celery salt
1 tsp onion powder
2 cups of all natural chicken or turkey broth

Sautee onions in olive oil, add sausage and cook until browned. Add in spices. Mix all ingredients with the croutons and bake at 375 until firm and beginning to brown, about 30 minutes.

The baking mix we use is from Cybele Pascal's Allergen Free Baker's Handbook. It's a wonderful book of recipes, but, better yet, the flour mix translates to almost any recipe. So, we are able to use her mix and create our own recipes.

Baking Mix:
4 cups superfine brown rice flour
1 1/3 cups potato starch
2/3 cup tapioca flour

Kinect Adventures

2010-11-12T08:51:00.002-05:00

I've seen a story all over the web about how a two year old with autism was able to really enjoy playing with the Kinect, and thought I'd blog about our experience. We received (as a wonderful pre-Christmas present) the Kinect the day it came out. Steve set it up that day, and Michael was already playing before I came home from work.

It was so cool how he noticed the box and figured out it was a video game, before Steve even said what it was. He supervised the entire setup and couldn't wait to play. Michael is pretty technically savvy, and enjoys exploring different options on the typical game controller. At first, it was hard for him to understand that he didn't NEED a controller for this game. He caught on very quickly though.

At first, it was pretty intimidating for Michael to figure out how to track the screen, stay in the game space, and play the game all at once. Now, a week later, he can turn on the game, use the voice commands to start up Kinect, and has even scored a gold on a few levels.

But, even better, he wants to share the fun. He's invited his Grandmother over this afternoon to play. And, he called a friend of his from school to invited him over this weekend! He never calls to invited people over! I am so looking forward to watching him explain how to play to both his grandmother and his friend.

On the negative side, I don't think Grandma will be able to play with him. The game requires a lot of physical movement (jumping, stepping side to side, matching poses, etc.) The requirements are great for Michael who still has a lot of issues knowing where his body is in space, and gross motor movements. But, for someone who is a little older with occasional balance problems, the game really isn't appropriate. But, I am sure they will have a lot of fun together.

I'll have to report back on Monday how it goes. Anyone local want to set up a play date?

We have a trailer!

2010-11-08T16:30:00.001-05:00

I am so excited and proud to announce that we finally have a trailer for our movie!! Please watch the trailer here and visit our facebook page here. We have put so much work into the movie, I really want as many people as possible to see it. Please watch the trailer and leave a comment? Thanks!!

Proud of my guy

2010-10-16T10:13:00.002-04:00

These last couple weeks have been pretty busy, with lots of great days, and a few more difficult ones thrown in. But, overall, I am so proud of Michael. He really is turning into a nice little kid.

We have been taking him to KEEN, which is a group play/exercise time. They have one-on-one helpers, usually teen volunteers, to help them. Last week, his helper commented on what a polite kid he is. I was just beaming. It's so easy to focus on all the things we still need to work on, and the occasional temper tantrums, that I lose sight of the great kid I have most of the time.

So today, I am going to be happy that I have a kid who will happily help me unload the dishwasher, says please and thank you, and genuinely wants to help others be happy. That is what I choose to focus on today!

Finally...

2010-10-04T19:07:00.000-04:00

Many years ago I was told that if we just got Michael's gut healed, he would be more willing to eat new foods. We started the diet and got out all the things he is allergic to over two years ago now. In the last couple weeks, I've noticed some startling things:

Michael is asking for new foods
He ate an almond butter and jelly sandwhich
He eats and LIKES broccoli and cauliflower
He nagged Steve to make him chocolate chip muffins

This is the child that never cared about food and hated to try anything new. Now, he's not exactly eating a full meal of new foods, but he's getting adventurous. He's actually mixing textures (daiya cheese sprinked on a burger!) and liking things.

I never thought this would happen. So, even if it takes a couple years, it IS possible for a picky eater to change!

KEEN

2010-09-23T13:10:00.003-04:00

I have been meaning to write a post all week about KEEN. It's a wonderful group that provides one to one support for kids with all kinds of disabilities to have two play sessions a month. And, it's a drop off program.

Michael had his first session last weekend. I know he was mostly excited because he saw the elevator, but I believe he really enjoyed the session. He's been talking about it, and telling us that he gets to go back in October. It's great to see him so excited about something new. And, I have to admit, having an hour to myself once in a while is a very nice idea!

Seeing through Michael's Eyes (sortof)

2010-09-17T10:08:00.003-04:00

Last night I woke up incredibly nauseous. It's such an unsettling feeling to know that you are about to run to the bathroom, and there is nothing you can do about it. Steve was still in his office working, so I asked him to keep me company while I waited.

I noticed that even though I really wanted his company, I had few words, and looking directly at him was nearly impossible. I guess when you are so focused on keeping yourself 'together', you just don't have any extra energy/focus for things that are normally easy.

At one point, Steve offered to make me a cup of ginger lemon tea. (What a wonderful man!) It took a few minutes for me to register what he was saying and to then get out a small 'yes to tea'.

Thankfully, there was only one episode and the tea was able to settle my stomach after. But wow, it's so hard to explain the feeling of revelation when I realized that sometimes you just CAN'T talk or make eye contact, or anything else. You just need to put all your energy into breathing.

I think I'll be a little more patient with Michael today!

Signs of maturity...

2010-09-13T10:56:00.001-04:00

I know that Michael is 8 years old now, and he should be able to do many things independently. But, he just hasn't been able to. I've noticed in the last month or so, he really is making huge progress. It started out with him picking his own clothes for school, and just little things here and there.

Last night, he wanted a bath so he went to his room and got his nighttime clothes ready and brought them into the bathroom. If I give him a time when the bath is done, he can watch the clock and let me know when he's ready. He still can't dry himself off effectively, but he can dress himself after his bath and get back to playing. Baby steps, but it makes me happy!

PANDAS?!

2010-09-11T22:25:00.001-04:00

It looks like Michael might have PANDAS. We've had him on antibiotics for a couple days now, and boy is it taking a toll on him. His tummy was so upset and he was so wiped out, he took himself to bed at 7 tonight! I sure hope the antibiotics help, and that he is back to himself soon. For now, I'm just a tad stressed.

So far, so good

2010-09-03T09:48:00.002-04:00

This has been a pretty good week so far. Michael is settling into his school routines, I'm settling back into work, and Steve has been getting a lot of his work done. I loved vacation, but it really is nice to feel more settled.

I went to a TACA meeting last night. It was all about the GFCF diet. Even though we have been doing the diet for more than two years now, it was still nice to get a few tips and talk with other parents doing the same thing. It is just so relaxing to talk with people who 'get it' and really understand what you are doing with your child and why.

Back to School

2010-08-30T21:03:00.002-04:00

Michael headed back to school today, much to everyone's relief. It was nice to have a break, but we all missed the structure of our school routine. He was a little nervous this morning but actually managed to pull out a fantastic day. Only one reminder for the whole day, and all his points! Yes, I'm very proud of him.

I'm also trying to get into an after school routine that ensures homework is done early. Today he was really hungry when he got home so he had an early dinner and then homework. Then, lots of playing and relaxing. I just hope the rest of the week goes as smoothly!

Fruit picking

2010-08-28T09:45:00.002-04:00

We went on a playdate yesterday with a friend of Michael's from school and his family. It was really nice and I think the kids had fun. The parents had a lot of fun too since we went apple and berry picking. (OK, maybe Steve didn't have as much fun since he ended up carting Michael around in a wheelbarrow.)

I was suprised that Michael seemed to enjoy picking the apples and promised that if I made a pie he would eat it. I didn't really believe him but I made the pie anyway.

So, we made our very first gluten/casein/soy/egg free apple pie. I was shocked that it actually browned, since so many of our creations come out of the oven looking the same that they went in. It was really funny because Michael was nagging all afternoon about when the pie would be ready and when he could eat it.

So, after much fussing, we cut into the pie and Michael had his first taste of apple pie. He's not neglected, he just never wanted to try before! He wasn't all that impressed and I ened up finishing his piece. The filling was pretty good but the crust still needs work. If I ever get it right, I'll let you know.

Of course, today's challenge is to make a peach/blackberry crisp. I have much more hope for that one!

One step forward..

2010-08-25T22:23:00.002-04:00

Today was a pretty good day overall, but the end was pretty depressing. I understand that Michael still has huge, enormous sensory issues, but I just don't understand how he can throw a tantrum over watching more doors after spending half an hour riding elevators and watching doors. Lately, he's been able to express his desire for the one thing that will let him leave happily(one more ride, playing a game when we get home, etc.). Today, he just couldn't. So, he dropped to the ground and screamed.

I'm pretty much over being embarassed by the tantrums, but it still depresses me to see him lose control. In some ways, the better he gets, the harder it is to see him lose it. So tonight, I'm just going to be thankful for the days he can hold it together and not focus on being disappointed when he can't.

Starting Over!

2010-08-24T20:35:00.002-04:00

OK, summer is quickly ending and it's time to start thinking about getting back into a routine. So, my new resolution is to get back to posting here. I miss sitting at the end of the day and reflecting on it. Some days are great, others not so great, but it's nice to keep track.

Today has been a mostly great day. We needed to take Michael for blood tests this morning. (I say 'we' in the most general sense of the word. Steve and Dan (my BIL) actually took Michael because they can only handle one traumatized person at a time.) Anyway, it has always taken at least two people to hold Michael still for the draw. Now that he's gotten so much bigger, it's pretty much impossible.

Today, Michael started out fussing and crying and then realized he just had to do it. He told the phlebotomist to 'take the blood out of my arm' and actually talked with her during the process! I couldn't believe it when Steve told me about it. But, it really sank in when I saw how proud Michael was.

Michael has struggled all summer with self control and behavior. It's nice to think that maybe he's finally making progress in holding it together and not melting down. Now, I'm sure that we still have tons of meltdowns ahead of us, but I am really taking this as a positive step.

Of course, after we got home Michael wanted to go ride elevators. It's his favorite treat in the world. And one that no one else likes. But, we had enough guilt that we took him to the mall and let him ride different elevators for over an hour. So, he was thrilled with that and still proud of himself for the rest of the day. I like good days!

Treat the child not the numbers!!

2010-06-09T17:01:00.002-04:00

OK, I hear that phrase a lot from biomedical doctors. It always seemed fairly obvious to me. Until yesterday. Michael had his 8 year old check up with his regular pediatrician. He weighed in at 56.6 lbs and 50 3/4 inches. (49th and 55th percentiles according to my math) I'm guessing that the nurse charted him incorrectly because the doctor was all concerned that his weight jumped to the 65th percentile.

We are talking about a child who has always been underweight. You can still see his ribs when he breathes in. I asked the doctor how we could possibly need to watch his weight when he is so obviously skinny. She said that obesity is a big problem and that doctors have to watch children carefully. I was absolutely floored. (Did I mention those ribs???) So, I came home and did my own math and felt better that he didn't suddenly jump several percentiles, but really question how such a smart professional can be so blind!

Hurray for Captain Underpants!

2010-06-06T17:34:00.003-04:00

Michael taught himself to read shortly after he turned 3. Since then, he has been able to read anything you put in front of him. Teachers, therapists, doctors, were all convinced that because he couldn't answer questions about what he read that he wasn't understanding it. This week, we finally got proof that he does understand!

My brother-in-law had given Michael a set of Captain Underpants books for Christmas a couple years ago. Michael had not been interested in reading them because of his overall fear of reading. I guess that he was so stressed about all the comprehension questions that he just decided not to read at home anymore. Every time I tried to suggest it, he just put the book down and wandered away. Between Steve and me I knew he had to have a reading gene in there, so I have been (trying to be) patient about it.

Last week I came across the boxed set sitting lonely on a shelf. I realized that it had a sound effect whenever you opened the box. Michael can't resist sound effects. So, when he was in another room, but could still here, I opened the box. Pitter patter of tromping feet. It took another several days before he would open any of the books. But, this week, a major breakthrough. Michael actually explained the books to my mother-in-law! She had never heard of Captain Underpants and was curious. If Steve or I had asked about it, he would have run into another room. But, because it was Grandma, it was OK. Based on his explanations, we knew he understood everything he read. And, better yet, he asked for the next four books in the series. Life is good! (OK, not exactly Watership Down, but I'll take it!!)

I am going to explode!

2010-05-31T18:23:00.002-04:00

We got back from Autism One very early this morning (around 3:30am). When I went into our room, I noticed Michael sleeping in the middle of the bed. I guess he figured we weren't using it, so he might as well camp out. We tried really hard not to wake him, but he woke up when we got into bed. He was genuinely happy to see us. We got several "I missed you guys!" before we finally got him back to sleep. He was still too excited to sleep well and was up several times before getting up for real around 6. Poor Dan! But, it was nice that he really did miss us, and was able to express it.

Then, we went to Whole Foods to do some catch up shopping. Normally, it's a terrible idea to bring Michael with us, because he likes to go up and down the aisles, watch the doors, anything but shop. Today, he actually helped push the cart and let us get what we needed. Very nice!

So, it's been a fantastic day, on top of a phenominal conference. I'm going to try to make sense of my notes from the conference over the week and share them. Plus, we got to do a lot of interviews for the movie, and things are going great. I'll be updating the movie sites this week as well. Dunno where I will find all the energy I'm going to need this week!

Autism Healing and Hope - the MOVIE!

2010-05-10T13:30:00.002-04:00

We are either totally insane, or extremely inspired. Steve and I have decided to make a documentary for parents of newly diagnosed kids. We started filming at the DAN! conference and hope to continue at Autism One later this month. One of the things that hurts the most is when a parent tells me that their doctor thinks autism is hopeless and that treatments are a sham, not to waste their time or money.

We have seen with our own eyes the difference that treatment can make in our son. Not every treatment works for every child, but there is a lot of scientific evidence that there are things you can do to help your child. Even if the "only" results you see are better sleeping or less tantruming, who among us whouldn't love that?

So, we are interviewing top doctors and therapists to briefly describe what treatments are available, and which kids they have the best results with. If you have any ideas for someone perfect to interview, please send a comment. If you want more information about the movie, please look here.

Apology and good info!

2010-05-03T10:01:00.002-04:00

I am so sorry for being away from the blog for so long. Between allergy season, the DAN! conference, and general life, things have been nuts. Plus, we have a special project that I'm hoping to announce this week. I know it's a tease, but trust me, it will be worth it. (At least in my opinion!)

The news that I absolutely had to share was that Generation Rescue is offering grants to help families who are just starting biomedical treatments. Applicatins are being accepted now until May 31, 2010. I am hoping that most of you won't qualify because you are already doing biomedical treatments with your child. However, if you haven't started, or have a friend who is thinking about it, now is the time!

Two Years Today

2010-03-17T16:43:00.003-04:00

It's hard to believe that Michael has been gluten/casein/soy free for exactly two years now. (We didn't find out about the egg/peanut allergies until later) In some ways it seems like the blink of an eye, in others, it seems like forever. Is it a ton of work? definitely. Is it all worth it? More than definitely.

When I think back over the last two years, Michael has made so much progress, and come such a long way. He is a happy, engaging kid. He still has a lot to work on, but he's with us, we are starting to have conversations, he no longer has major GI issues, and life is generally good. I wouldn't go back to the spacey, GI issue filled days before the diet for anything.

I do have to say that it is so much easier to follow the allergy friendly diets with all the new resources that are available. We make almost everything from scratch, with the help of great recipes and a ton of patience from the head baker (Steve). I don't know what I would do without amazon, the common market, and whole foods. Plus, I have actually learned to cook. Before I could pass off a few recipes, but now I can look at a recipe, make the substitutions, and come up with something yummy much of the time.

So, it's been a long two years, but I am really looking forward to the next two, and all the years after.

HANDLE, Cranio, Enhansa

2010-02-28T19:57:00.003-05:00

If anyone asked me what my three biggest "wow"s would be with Michael, these would have to be them. We have done so many things with him that have been miraculous (Tomatis, diet, etc.), but these are current and making a huge impact on him now.

We had Michael's HANDLE followup this afternoon. It is so remarkable for me to think back where he was last year when we started, and compare that child to the Michael we have now. Today he was interacting, asking questions, being polite, so many wonderful things. Last year he was shy, acting out, impatient. He still has a long way to go, but I am just so thrilled with his progress.

I think the biggest things he has gained from HANDLE have to be better vision, self-confidence and body awareness. He has always struggled with getting his eyes to work together, making distance reading and close work like writing extremely difficult for him. Now, when his schoolwork comes home I can actually read it! And, no more throwing pencils to get out of writing! Also, he really seems to have a much better idea of where his body is in space, letting him freely jump, run, and just be kid. I love it!

I think the CST works so well with HANDLE. As his therapist has been working on his frontal lobe and the two hemispheres of his brain working together, we are seeing huge gains in self control, expression, curiosity, and pretend play. I'm not 100% sure what to attribute to HANDLE and what to CST, but together, they make a whole new kid.

Underlying all these gains has to be the enhansa. Now that Michael is free of the chronic candida infection, his tummy problems are gone and so is his OCD and most of his aggression. I can see every day that as his body heals, his brain does too. It is hard to understand how yeast can do so much damage, but boy do I believe it! Plus, the anti-oxidants have to really help in reducing inflammation and just making him healthier.

So, after much introspection on the way home, I have to rave about my favorite three 'wow's -- at least for today!

Good, but different....

2010-02-12T19:43:00.001-05:00

Michael finally has an imaginary friend... but it's very different. He has a toy box that he calls his treasure chest.. but now it has a name. So he is putting his treasures inside "Matthew" and carrying him around from room to room. Not quite sure what to make of it, but it's definitely more imagination than we've ever seen. So, I'm really kinda happy about it!

I am guessing that I'm pretty content with things these days. Michael is happy, doing well in school, and making real progress. I'm actually finding time to find the house and do projects I've been putting off for years. It's a little hard to fathom, but content is good, right? I mean, we're still full steam ahead on biomed, and still researching, but I just don't feel as frantic as I have in the past. Of course, now that I've actually typed out the words, I'm afraid I'll jinx something!

Support for Dr. Wakefield

2010-02-02T17:03:00.005-05:00

"Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres."
-- 1 Corinthians 13:4-7

I was thinking about this verse the other day in relation to Valentine’s Day. In the same day, I saw a facebook request by a friend to send Valentine’s Day cards to show support for Dr. Wakefield. There have been so many blog entries and articles talking about how horrible the decision was, and how the medical and legal fields have been taken over by special interests groups – I don’t really want to rehash that. (If you don’t know what I am talking about, just go over to Age of Autism and read for a while.) I am a firm supporter of Dr. Wakefield and don’t feel the need to go beyond that at this time.

But, when I read this verse, it really put into perspective how selfless Dr. Wakefield has been in his support of our children. To survive the public flogging he has been through, and come out the other end with his dignity and integrity intact, shows his true character. When someone shows so much love for our children, they deserve our respect and appreciation. Thank you Dr. Wakefield, you will never know how many lives you have touched in a positive and loving way.

Valentine’s day is still a couple weeks away – plenty of time to find a card, or help your child make one. If you can, please send them via Thoughtful House.

Dr. Andrew Wakefield
c/o Thoughtful House Center for Children
3001 Bee Caves Road
Suite 120
Austin, TX 78746

Please, vote!!!!!!

2010-01-21T06:09:00.002-05:00

It's been a while since I've posted.. so far, this is an exciting, productive year for our family. Michael is doing amazingly well, I'm actually getting some projects done around that house that we've been putting off for years.. and I think we're just generally happy and content. So, what am I begging for?

Chase Community Giving is donating $5,000,000 to charities around the country. But, you have to vote on facebook for the recipients. It is so easy and quick to do.

Why vote for National Autism Association? They spread the word about hope. They have programs to help families in hard times. They have programs to help keep kids from wandering. They are one of my top five autism organizations.

So, if you have a facebook account, please, please, please go to www.voteautismnow.com and cast your vote for the National Autism Association Inc.

Thanks!

Happy New Year!

2010-01-03T14:43:00.002-05:00

It's been a crazy but great holiday season. But, I am so ready to go back to whatever passes for 'normal' around here. Tomorrow is back to work, back to school, and back to reality. I'll miss the relaxation from the holidays, but it will be nice to get back on a schedule. Michael has certainly missed that!

But, one last present! Game giveaway has a great free game today, and it's kid-friendly. Let me know what you think?

Big snow of 2009!

2009-12-23T19:45:00.000-05:00

I normally don't post video, but this one was just too cute.

Michael had so much fun playing in the snow today... sledding, walking, throwing snow. I love when he gets to do 'typical kid stuff'!!!!

Taking my life off 'hold'

2009-12-20T09:49:00.002-05:00

I took this last week as a vacation week so I could get stuff done around the house, and prepare for the holidays. After I finally got the last presents wrapped and ready to go, I started to attack the piles of stuff in my bedroom. Wow! Talk about a huge amount of 'stuff'!

As I was going through some of the piles shoved further to the back, I realized there were boxes there that were five years old! As I was going through and trying to decide what to keep and what to toss/freecycle, I realized how much we had put on hold ever since Michael got his diagnosis. Our world has revolved around him for the past five years, almost to the exclusion of all else. Not that this is a bad thing - he has made such tremendous progress. But, kinda sad in another way when I look back on the things that used to matter to me.

I was talking with Steve and we realized that our life has changed so much since October. That was when we realized that Michael finally had the perfect placement (for him), and that he was incredibly happy where he is, and hopefully we have a break from fighting the 'system' to get him that placement.

October is also when we started seeing results from a new antioxidant we have been trying. Michael is happy. He's learning. We aren't having the daily battles we once did. A bad day now used to be an incredibly good one - just a year ago. I have so much to be thankful for!

So, now that we aren't in constant battle mode, there is actually time for us. We've taken a vacation. We've spent time together. Now, it's time for me to focus on my own health, and trying to get the house back. I'm not sure if there is any hope for the carpets (supplements really stain when they come back up!) but who knows, maybe the rest of the house can be guest-ready.

On that same topic, we finally broke out a new set of dishes. I had bought them soon after we moved into the house, intending to invite people over for dinner. It's a beautiful set, with all the serving pieces. But, after life started spiraling out of control, I lost hope of having guests and the set got banished to the garage. Yesterday, we brought them in, washed them all, and loaded the cabinet. Anyone want to come over for dinner? It will still be allergy friendly and life is still chaotic, but I have hope.

Does any of this mean that we are less focused on Michael and his recovery? Not at all. It just means that he is finally doing well enough that we can have other interests and maybe a few tiny moments of 'normal'. It's a Christmas wish so it has to come true, right?

What a shock, ethics violations at the CDC regarding vaccine safety!

2009-12-18T15:16:00.003-05:00

I was really surprised to see coverage of this inspector general report in a mainstream newspaper. If the advisors have financial interests in the outcome of their recommendations, how much can we trust their opinion? If the CDC shows such disreagard for the law, how can we trust them with our children?

Daiya has made my day!!!!

2009-12-15T19:53:00.005-05:00

Tonight we gave Michael a grilled cheese sandwhich. He hasn't been able to have one since we went gluten/casein/soy free. He normally doesn't care much about food, but tonight he actually asked if he could have another sandwhich. I don't know if my heart broke more that it took so long to find a 'cheese' he could eat, or that he was so happy.

I never thought it would be so hard to find a cheese like product that didn't have soy/dairy/wheat, etc and actually melted and tasted good. But, finally, we have one and the house is happy. Now, please don't let the grocery store ever run out!!!

Here is a link to their website - you can see if there are any ingredients I overlooked, or if they have it near you. I am one happy mommy!!!

Holiday Fun!

2009-12-10T11:03:00.002-05:00

I was looking through all the holiday specials and came across yet another wii game. It's called "We Wish You a Merry Christmas", and it's just fun. We decided to get it for Michael, only to discover he didn't want anything to do with it. I guess it's that whole 'new' thing. So, what's a parent to do? Trick him, of course!

Steve and I started to play it, hoping to pique his interest, and it actually worked! There are a lot of things to do - listening to carols, decorating a tree, opening an advent calendar, and a a few cute mini games. (Yes, I'm totally addicted to one of them). What's really cool is that you can play the game no matter what level you are at. I'm hoping this one lasts til next year!

So, is it good to trick him into liking a video game? I'm not sure on that one, but it's great to see him smile, and have him be able to win some of the games with Steve and I really trying. He's getting fast, his hand-eye coordination is great, and I'm just thrilled. I never expected a game to be a real present to me.

What an awesome holiday weekend!

2009-11-30T10:31:00.003-05:00

I managed to badly sprain my back just in time for Thanksgiving. So, I haven't been able to move much, and have been a tiny bit grumpy. I was worried how Michael would handle things, and have been very, very impressed.

Saturday the three of us went to cranio. Steve had an appt first, so Michael and I had an hour to kill in the waiting room. I was really worried he would act out and I wouldn't be able to keep him in the waiting room until his appointment. (In the past, my not feeling well was a great cue to take advantage) Not this time! Michael sat nicely on the couch and played with his Leapster and Twist n Shout math game. He even interacted with people as they came and went. Very, very impressed!

Sunday I asked Michael if he wanted to learn a new game with me. He actually let me teach him how to play dominoes, and picked it up incredibly quickly. But, what I love the most is how much of a good sport he is. He didn't try to manipulate the rules so he could win, and was genuinely happy for me when I won. I was so proud of him!

Overall he had a great holdiay. I know he missed school, and was anxious to go back this morning, but it was nice to just spend some time with him. I wish I had been feeling better to enjoy it more, but I definitely got the impression that he was looking out for me since he knew I wasn't feeling well. I know he still has a long road ahead of him, but each step seems to be getting more comfortable, and more confident!

2009-11-25T09:43:00.003-05:00

I try not to beg for money very often, but these two brothers really make my heart ache. If ten people would just loan $20 each, their loan would be funded before thanksgiving. This is a VERY short term loan - you would have your money back in 6 months. Just think of the impact you would have on their lives and the tiny impact it would have on your own wallet. If you have anything to be grateful for this year, please consider making a loan for these sweet boys!

Is the truth finally coming out???

2009-11-21T20:36:00.001-05:00

Please read this article... sound, reproducible science, from an unbiased party!!!!

How does time get away from me?

2009-11-21T12:45:00.002-05:00

It seems like the last couple weeks have just flown by. Part of it is that Steve and I took a mini-vacation for a couple days, part of it is that we're just really busy trying to keep everything together. But, hopefully, things are looking up.

Michael has been doing amazingly well. Many kids get angry with their parents when they come back from time away. Michael was so happy to see us, wanted to be hugged and kissed right away, and even asked us how our trip was. I was so shocked by the question and happy with the hugs! He was great for Dan while we were gone, and even did well in school. I guess he really is getting much more flexible.

We are keeping up with HANDLE, cranio, enhansa, and isotonix. I really think the combination, along with other general nutritional support is just helping Michael get stronger and stronger. And, taller and taller. Tonight I have to see how tall he is. It seems like he grew at least an inch while we were gone!

Today I am hoping to reclaim the kitchen, and maybe I can get a helper.. wish me luck!

Desiree's Story - Vaccine Injury, Biomedical Healing!

2009-11-06T12:21:00.002-05:00

We are so used to hearing that regression following childhood immunizations is just 'coincidental' and that the the autism was there all along. Now, as horrible as this is for Desiree to have to experience, at least she is able to put into words what so many of our children experience, and can't express. I am so happy to be able to post the second video, showing the dramatic improvement biomedical treatment can bring about. I wish every child hurt by a vaccine could get the same results!!!

Desiree After Receiving Seasonal Flu Shot:

Desiree AFTER Biomed Treatments:

A badly needed laugh!!!!

2009-11-06T08:28:00.001-05:00

Happy Cinco de Linco!!!

2009-11-05T11:23:00.004-05:00

I just wanted to remind everyone that today is Cinco de Linco at Lend for Health. A lot of us have really tight funding and don't think that we can make a difference. But, when we get together, we can make a HUGE difference, one child at a time.

I *REALLY* want to see Gabriel & Christopher's loan funded. These two kids are in so much pain, they need relief, NOW. Please, if you can give up one fast food meal to help them, I would really, really appreciate it.

Every little bit helps!!!!

First two missing teeth!!!!!

2009-10-29T22:02:00.003-04:00

Michael lost BOTH his bottom baby teeth today!! The school nurse called to tell me. And, they sent him home with two little tooth necklaces (taped shut), one for each tooth. What kind of school pays so much attention to details to have this on hand!!! Have I mentioned how much I LOVE LOVE LOVE his school????

And, how fitting is it that my super achiever doesn't lose one first tooth like everyone else... he has to do 'both at the same time' as he is so fond of saying?

Please watch before you vaccinate your kids!

2009-10-26T15:16:00.000-04:00

More love for the wii!!

2009-10-25T12:50:00.003-04:00

One of the things that frustrates us with playdates is that Michael really doesn't like to play board games, or pretty much any 'regular' game. But, the last couple days he has been playing Mario Party 8 with me and Steve. He has played it before, but always insisted on playing by himself. Now, he is playing with us, taking turns nicely, and really being a great sport. So, now we just need to see if this new skill can translate to a playdate!

It is so nice to be able to do 'typical' things with him and just have a great time. Of course, since I know what a hard time some spectrum kids have with empathy and winning/losing, I am just bursting with pride that he is handling the game so well. Yeah Michael!!!!

Pictures from Bounce U!

2009-10-25T11:08:00.008-04:00

I finally edited some of the pictures from Bounce U. Now, I'll see if I can post them. I am still in awe of how well my little guy can climb, balance, and even throw overhand! This from a kid who refused to jump over a line drawn on the floor just a couple years ago!!!!

Thank you Bounce U!!!!

2009-10-21T17:47:00.002-04:00

On Monday night there was a special needs night at the Clarksburg Bounce U. We signed Michael up not knowing what to expect. He is really freaked out by lots of noise and the unexpected so we were a little nervous.

When Steve and Michael got there, there were only two other children there. The three of them had the whole place to themselves!! Michael was climbing things I NEVER thought he'd be able to climb, throwing a ball overhand at targets, and generally having an awesome time.

One of the best parts was a huge round climber where he had to use his arms to pull/push himself up through a mesh to get to the next level. It took him a while to figure it out, but he did it, and Steve got a huge "TADA" when he got to the top. I don't think I've ever seen Michael looking so happy and proud of himself.

Steve took so many pictures and video it feels like was there with them. I am a little nervous that there were so few kids.. I really want them to do another special needs night so that kids like Michael who would normally be too intimidated get a chance to find out how fun it is. So, if you are local, I'll definitely be posting when the next one is announced. Definitely an event not to be missed!

Sometimes you have to smile...

2009-10-13T18:18:00.001-04:00

I've been trying really hard to get back into an exercise routine. I have been using the wii fit for yoga the last week or so, but haven't been very impressed with the cardio and strength pieces. So, yesterday I started with EA Sports Active. Let's just say that it really, really kicked my butt yesterday, and more so today.

I was sitting on the couch after today's workout feeling really silly for not filling my water glass before the workout. Then, Michael came bounding into the room full of energy and happiness. (Have I mentioned how much I love Enhansa, and Cranio, and HANDLE???) He filled my water glass 4 times for me! Each time he wanted to take a sip and then laughed while I downed the rest of the glass. He thought it was the funniest game, and I thought he was the best son in the universe. Not bad, huh?

Is Autism Associated with A Viral Infection?

2009-10-13T07:38:00.003-04:00

This is a fascinating article from David Kirby. It sounds like the science is strong, and well-respected. I hope to hear more about it, and soon!

Things with us are really, really good. It's nice to be living mostly calm for a little while. Not quite sure what to make of it, but boy am I happy! Hopefully I will be able to post some good things soon, as soon as my work crisis calms a little. (Wouldn't it be nice to be calm at home and work at the same time???)

If it sounds too goo to be true....

2009-10-05T21:47:00.002-04:00

I'd been looking at these pans with great longing... what girl wouldn't want diamond coated pans? But thanks to this report, I no longer have any thoughts at all about cheating on my stainless steel. I do believe that it's pretty sneaky to declare them teflon-free based on a trade mark. Oh well, back to the stove!

It's official.. 1 in 100, or 1 in 58 boys have an ASD

2009-10-03T16:30:00.002-04:00

This article from Age of Autism talks about how the CDC chose to make this announcement late on a Friday afternoon and is still not alarmed by the constantly rising autism numbers. Will they become alarmed before it's one in twenty boys???

Awesome, Awesome Day!

2009-09-29T22:12:00.001-04:00

I really don't want to jinx it, but Michael has had 3 'fantastic' days in a row now at school. Today, he didn't even have any redirections marked. It is hard to believe that just a week ago we had a quickly scheduled IEP meeting to discuss behavior.

Then, he came home and played nicely, listened to us, talked with my Aunt on the phone, and did his homework quickly/well. I am not even sure that I recognize him tonight!

Could all this be due to the new purple juice? Or is it a combination of the new juice, the enhansa, and the HANDLE all working together? Whatever it is, I am one happy Mommy!

More scary 'side effects'

2009-09-29T13:26:00.003-04:00

OK, so I have vaccines on the brain right now.. my company is tyring to mandate the flu shot for all workers. I'm hopeful that they will approve my medical exemption, but don't know where to look for another job if they don't. Anyway, here is another terrifying story about 'side effects' from 'harmless' vaccines.

Alert After U.K. Cervical Cancer Vaccine Death

Must watch!

2009-09-25T16:49:00.000-04:00

So very sad.

2009-09-20T10:17:00.002-04:00

We took Michael to his cranio appointment yesterday morning. There is a pediatrician's office on the first floor of the building. Generally, when we go on Saturdays the building is empty and quiet. Yesterday, there was a line of parents and children (mostly boys) winding through the lobby.

When I realized they were all there for flu shots, I almost cried. Seeing all those beautiful faces, and knowing that the shot they were about to get was full of mercury made me want to cry. I wanted to ask the parents if they knew what they were doing to their children, if they truly understood the risks. But, we were running late, Michael had elevators to ride, and I didn't have the strength to fight any more battles.

Michael and the pineapple!

2009-09-19T16:20:00.001-04:00

"Is that food? Can I have some?" A direct quote from Michael watching me core a pineapple. Then, not only did he eat some, he let me put pineapple and apple on the same plate! Something is definitely up with this kid!!!!!

Yesterday he stole some of Dan's apple chunks, now today he wanted pineapple. He even drank some of the juice when I poured it into a cup. I don't want to attribute this wonderful behavior too quickly, but boy am I excited!

AWESOME day at school today! I am so excited!!

2009-09-18T17:49:00.003-04:00

Michael got all stars at school today, and he actually ate some of his lunch. He didn't sleep well last night, so I was bracing for the worst when the bus pulled up... but the driver said that his teacher was very happy with his day, and he was clutching two little plastic snakes that he got to pick out of the prize box!!

I am very hopeful since we started something new yesterday. If we keep seeing great things, I hope to have a good post on it soon!!!

Have a great weekend!

Senator Tom Harkin (D) Iowa, named Chairman of the Senate Health Committee

2009-09-10T07:23:00.003-04:00

This morning's Age of Autism top story is a re-posting of an August story which talks about Senator Harkin's support of vaccine safety research, including a vaccinated/unvaccinated study. I admired him for his words during that hearing, and am hopeful that as Chairman of this critical committee he will champion research, sanity, and our kids!

9-9-09 Please Help!!!!!

2009-09-09T07:45:00.001-04:00

It's time!

NAA's How Much Longer Campaign is NOW LIVE in our Action Center and ready for you to send a LOUD message to President Obama, the FDA, the CDC, the National Institutes of Health, the American Academy of Pediatrics, the Department of Education, the Advisory Committee on Immunization Practices and all of America! Your messages will be sent automatically to the above recipients with just a click of your mouse.

How much longer must our children and families wait for insurance coverage, meaningful research, safer vaccines, effective treatment, appropriate services and support, a safe educational environment and for autism to finally be recognized as a national crisis?

Go to the NAA Autism Action Center now and let your voice be heard!

09-09-09 is How Much Longer for Autism Day

2009-09-02T22:37:00.000-04:00

Dear Think Autism Friends;

In the past decade, we've asked for government aid, insurance coverage, and meaningful research for our children with autism. We've asked for the abuse in schools to stop, for vaccines to be held to higher safety standards, and for our children to be treated for their medical issues. Most of all, we've asked for autism to be declared a national health crisis.

We've asked for these things politely, impolitely, loudly, softly, creatively, professionally, in small numbers and in large...we’ve asked and we’ve asked again. But as it stands today, we have more cases of abuse, wandering-related deaths, seizure-related deaths, bankruptcies and divorce in our community than ever before.

With the fatigue that comes from constant uphill battles, along with a gross lack of resources, we live in a permanent state of asking one question: How Much Longer? How much longer will we continue to see the numbers climb? And our children die? And research funding go to the wrong places? And our children be abused? And health agencies avoid the real issues? Really, how much longer can this crisis continue before we turn a corner? When it’s 1 in 75 kids? 1 in 50? 1 in 25? Do we really want it to get that point? Tired or not, we have to kick it up a notch.

So our plea to you is this: take two minutes out of your day on 09-09-09 to join our How Much Longer For Autism campaign – a mass mailing/faxing/calling campaign done through NAA’s easy web-based advocacy software. It costs nothing, and could finally create the awareness we need.

Will you help? Say yes only if you don’t mind a little controversy. This campaign isn’t warm and fuzzy and it’s far from polite. It’s edgy, sarcastic and harsh at times, but when you live day to day seeing an increasing number of children suffer from vulgar abuse, impossible challenges, even death, you tend to put graceful asks aside for a message that people might actually notice.

Will you help spread awareness? Take a stand for a healthier future? Raise your voice for civil rights and an end to abuse? Then please visit: http://naa.kintera.org/actioncenter and get ready to join us on 09-09-09!

For more information and to preview our 09-09-09 messages, visit http://www.nationalautismassociation.org/howmuchlonger.php.

Autism and Nintendo's Wii

2009-08-30T22:00:00.001-04:00

Although I am sure there will be many people who disagree with me, I firmly believe that every child on the autism spectrum needs a wii. We have had ours for about 2 ½ years now, and I can’t imagine what our life would be like without it.

The most obvious benefit of the wii is in gross motor skills and general exercise. Our two favorite games are the new Sports Resort game, and the older Outdoor Challenge. Both of these games have activities that require a ton of movement and coordination. On a day when Michael needs to burn off energy but can’t get outside, they are perfect.

What I like the best is that the game is set to adapt to each user’s current level. There are some activities that require jumping and running, others where you can sit and move only your upper body. As you get better at each activity, you get more levels and options – a great incentive to keep practicing.

I was surprised at the level of fine motor skills that are required for some of the games. For example, in the Island Flyover game in Sports Resort, you are looking for 80 different points of interest around the islands. Some are easy to get to, but others require a great deal of fine motor skills (i.e. flying through tunnels).

The archery game requires hand-eye coordination in order to hit the targets and get the most points. There is also a sword-based speed slicing game that combines visual processing speed and fine motor control. The object is to slice an object before you opponent, using the direction indicated on screen. On one hand, it’s simple, but it also requires fast processing of both vision input and motor output.

All the things I’ve talked about so far are fairly straight-forward physical benefits. What isn’t so obvious is the social skills building that the game provides. The first is simple turn-taking. Each player gets a turn, and has to wait for their next turn. But there are also levels of sportsmanship and teamwork that are often overlooked. Working together toward a common goal often brings out the best in kids, even if that goal is just to move your canoe faster than the other team.

Another final, hidden benefit of the wii is how it can mask social awkwardness. Michael can’t sit and play a board game with you, but he can bowl. Just being able to turn on the wii has saved many playdates from disaster. Other kids can overlook social deficits if they are genuinely having fun, and are willing to come back and play again. A very nice thing for our kids!

I don’t think I’ve met a parent who has a child on the spectrum and a wii who has regretted the purchase. Most parents value one set of benefits more highly than others, but everyone understands how good it is for their child. So, how do we contact Nintendo for an autism grant?

Walking on Air!

2009-08-29T12:47:00.000-04:00

I am walking about six inches above the ground today. We went to the open house at Michael's new school yesterday afternoon. It was so wonderful to see a whole school dedicated to students with special needs, where everyone was really focused on bringing out the best in each child. Michael has been smiling each time he talks about school starting on Monday. Such a change from last year!

The classroom he is in only has five boys right now, although it can go up to nine. There is one teacher and two assistant teachers. Plus, two of the boys have dedicated one-on-one support. So, there are five adults in the room almost all the time, with OT, PT, and Speech therapists, a behaviorist, and social worker coming in and out to work with the kids.

But, the very best part is how well all the teachers and staff understand Michael already. At one point, Michael was getting a little agitated, and I pointed out how the pitch of his voice rose when he was upset. The teacher had already noticed. Such a change from others who have worked with him and escalated the agitation because they couldn't recognize it until Michael became physical. I really have a great feeling about this school year!

NAA on School Abuse

2009-08-26T19:59:00.003-04:00

This is very disturbing, but true. Please take the time to read it, and understand that our kids do need advocates to speak for them, and protect them.

Dear Department of Education...

Too many loans on Lend 4 Health!

2009-08-25T17:57:00.002-04:00

I just visited the Lend 4 Health website and noticed that there are way too many loans looking for funding. I wanted to contribute to each of them, but things are really tight right now. So, I did what I could, and ask you to do what you can.

The whole point of Lend 4 Health is that my tiny loan combines with your tiny loan, and a whole bunch of other tiny loans to add up to one big loan that can make a huge difference for a child with autism.

I know you might think that a 5 dollar loan can't make a difference, but trust me, it can! So, would you consider giving up a lunch out or a designer coffee and instead lend that little bit to a child waiting for treatment? Thank you!

A mainstream columnist who 'gets it'!!!!

2009-08-21T19:35:00.002-04:00

I never thought I'd be reading about a gluten/casein free diet in the Washington Post. Today's Family Almanac column even mentions finding a DAN! doctor and attending a conference. I am so excited to see such a positive, helpful article about autism instead of the usual doom and gloom. Thank you, Marguerite Kelly!!!

Our first 'good' haircut!!!

2009-08-17T20:09:00.002-04:00

Michael has always hated having his hair cut. I know there are a lot of sensory issues involved, in addition to having to trust a stranger with sharp objects. I definitely can't blame him for hating it.

We have always taken him to the same place for his haircuts, so he knows them and they know him. They know not to use clippers, and to be slow and quiet. They always let Michael sit on Steve's lap so he can hold him still and try to keep him calm.

This time was totally different. Michael sat in the chair by himself. He didn't scream, squirm, or cry. He actually talked with the stylist while she was cutting his hair!!!! Steve could barely keep his jaw off the floor, and even the stylists noticed the difference.

The only thing we've added since his last haircut is HANDLE. It is a wonderful set of activities that make all the sense in the world, once you think about it. The whole process is so gentle and easy, it's hard to believe it can make such a difference. Looking at my smiling child with a great haircut has reinforced my belief!

It's never, ever too late!

2009-08-12T19:44:00.004-04:00

It's been a rough week here because Steve has been out of town for the last several days. Michael and I have really missed him. So, when I saw a topic of 'hopeism' on Age of Autism, I knew I had to read it right away. I was smiling and crying at the same time, and counting all our blessings.

Sometimes I get so caught up in all the things that Michael can't do, I forget about all the wonderful things he CAN do, and does. Every day we get to see more of his personality, and it's awesome to see another parent getting to see parts of her daughter she thought she'd lost so many years ago.

So, go read, watch the video, and have a tissue ready!

What I find most ironic is the article above it, about Enhansa. I truly believe Michael has made such fantastic leaps this year because of Enhansa. So, having these two articles back to back is just perfect!

1 in 100

2009-08-10T18:30:00.002-04:00

I've seen references in the last week or so to a new prevalence number - 1 in every 100 children now has a diagnosis on the autism spectrum. That's really scary. More and more kids are being diagnosed, yet all we hear about is what "doesn't" cause autism. With so many lives being affected, don't you think they could come up with what DOES cause autism?

I wanted to find the source documents for the new number, and found this. When do you think the CDC will actually take these numbers seriously? When will someone become interested in .6 percent of children who had the diagnosis, but lost it? Isn't that something worth studying?

Michael's Getting nosy!

2009-08-09T12:43:00.002-04:00

This is a very good thing. This morning my Aunt called me to chat. So, we were talking for a little bit while Michael was playing. As soon as I hung up the phone, he asked, "Well who was that, Mommy?" It was so nice. Normally he doesn't pay much attention to what I'm doing, and seldom calls me by name. Definitely a good thing!

It still fascinates me how Michael learns. He's been watching Sesame Street a lot lately. He has a binder full of episodes, and he picks and chooses which one he wants to watch. Then, he fast forwards until he gets to the part he wants, and just watches that part. For a while I thought he was just being a kid, but now I am realizing that he's learning from each of the parts he keeps playing.

The banana interview on Elmo's world led to him eating bananas, and banana bread, and even trying fried plantains. Another skit involved different kinds of bicyles. So, he decided that he wanted to ride his bike. It's strange to have a 7 year old watching sesame street, but if he's learning and happy, I'm very happy!

Happy Weekend!

2009-08-08T10:40:00.002-04:00

It's been a long week in a number of ways, but things are normalizing. It was Michael's last week of summer camp, and he is definitely going to miss it. The camp is run by an amazing team that really understands 'our' kids. It has been wonderful to see Michael so happy to go to camp every morning!

Mom is recovering nicely from knee replacement surgery. I didn't realize how worried I was about her until I actually got to go visit. She is sounding stronger every day, and mostly back to herself.

One of the best things, is that I don't remember Michael laughing so much. He is understanding the jokes on tv, imitating some of the humor, and just enjoying things so much more. When he's happy, I'm happy.

And finally, I have another friend with a loan request up on Lend 4 Health. She's also going through a rough patch, so I wanted to post a link to their request. It's a loan, quick and easy to do, and really will make a difference!

Happy Cinco de Linco!!!

2009-08-05T10:32:00.002-04:00

Cinco de Linco is a fabulous idea that was created by Jeanne from Charlie in Wonderland. It's a challenge to make $5 loans to Lend for Health on the 5th of every month. So, do you have five dollars to lend to a child who needs help affording biomedical treatments?

To steal shamelessly from Jeanne's blog:

"So, here’s the bottom line: The kids on Lend4Health.org need your help. They need you to read their stories and chip-in $5 loans, or more if you’re feeling über generous. There are currently 4 open loans on Lend4Health, 4 loans for 5 kids. These kids need your help, your $5 loans!

For the past year plus, L4H has been facilitating loans for individuals on the autism spectrum to help their parents pay for costly treatments that are not covered by insurance. These loans are changing the lives of these children. The loans give the children a chance for a better life, a better quality of life, happiness, and better health.

You know how easy it is to loan a friend a few bucks for a coffee, for a beer, or for lunch right? Well, it’s just as easy to loan a few bucks to a child in need. Just visit Lend4Health.org. Read the stories of the kids with open loans. Choose one, two, or all of the kids and make your loans. It’s that easy.

I can tell you from my own personal experience, it feels damn good to help these kids. It feels good and right. It is good and right. It’s hard to believe a few dollars could change a person’s life; but it’s true. Your $5, plus my $5, plus her $5, plus their $5, plus a bunch of other $5 equals a better life for these kids.

Please visit Lend4Health.org TODAY and make your Cinco De Linco loans. Make sure you designate your loan as CDL, that way we can keep track of how many kids we are helping. You can do this on the PayPal page where you review your payment. Just under the description you’ll see “Add special instructions to merchant” – click there. A box will pop up where you can type in a message designating your contribution as a “Cinco De Linco Loan” – or “Happy Cinco De Linco Day!” – whatever you want, as long as you include the words, “Cinco De Linco.” "

Lend for Health

Special Diets Don't Help??!!??

2009-08-04T19:17:00.003-04:00

I've been dismayed by the amount of coverage that the so-called study of the effectiveness of using special diets for Autism has gotten. I am especially sensitive to this issue since Michael is IgE allergic to three different foods. It's hard to believe that I have already had to defend myself for taking those foods out of his diet - even though they are potentially anaphalactic!

I wanted to do a post talking about how well eliminating allergic foods has worked for us, but then I came across this posting. It says everyting I want to say, but much more eloquently.

Another day down...

2009-08-01T20:49:00.003-04:00

What a day! Some good (2 recipes actually worked today), some bad (Mom's in a lot of pain from the surgery, and they 'forgot' to give her the pain meds multiple times!), and some really ugly (the worst meltdown we've had in months). But, when I see him sleeping like such an angel.. it makes the whole day good.

I always heard that you get the endorphins after childbirth so you would bond with your child and be willing to have another. I'm just wondering if there are some autism endorphins that make all the work worthwhile, and all the pain melt away when he does something absolutely sweet, totally unprompted. How else do we go day after day after day?

A friend in need...

2009-08-01T16:04:00.003-04:00

One of the women I admire the most lost her house to a Tornado this week. She and her family are OK, but their house is gone. Tori (from Lend4Health) has set up a ChipIn page for them. If you can, please visit the page and see if you can help out. Just a little from a lot of people can make a big difference!

A Powerful Morning!

2009-08-01T09:22:00.004-04:00

This morning, Michael ate cereal. I know that that is not remarkable in most households. However, here, it's close to a miracle. His interest in food is so low that any new food is celebrated. But, he asked for cereal, we went out and found some, and he ate it. Happily, with no prompting. Now that is a happy surprise.

He has also asked to make banana bread. That will be the adventure this morning. Wish us luck!

Also, please read this article at the Huffington Post. It is so powerful, and echoes so much of our journey with Michael. He's nowhere near recovered, but so much better than he was when we started!

Finally, today's giveaway is a greeting card maker. It isn't super fancy, but will get the job done. Check it out!

Another Great Day!

2009-07-28T22:48:00.002-04:00

Michael has really come to love two activities this summer - summer camp, and therapeutic riding. This afternoon, he put the two activities together in a brand new way.

When he gets home from camp on Tuesday afternoons, there is just a little bit of time to change and get out the door for riding. On the way out this afternoon, he asked if he could bring this week's camp schedule in the car with him. When he got to the riding barn, he brought the schedule in with him so he could show it to the program director. He's never done any kind of show and tell before. It was 100% his idea, just wanting to share the joy of one activity with someone he loves from a totally different activity. It took me a long time to pick my jaw up off the floor.

I'm not quite sure what's going on, but the changes we are seeing this summer are huge. Better eye contact, using people's names, making connections between people, places and activities.. I just can't wait to see what he comes up with next!

Confirmation that Biomed Works!

2009-07-25T08:45:00.002-04:00

Michael has been having so much fun in camp this year. It's the same camp that he went to last summer, so he knew what to expect, and the staff knew him. Yesterday, when we went to pick him up, I had a chance to talk with the camp director a little. She said that for the first week of camp, she and the assistant director kept wondering if Michael was the same child they had last summer!

He is particpating in the activities this year, talking to them so much more, and generally fitting in with the rest of the camp. Last year, all he wanted to do was hang out in the hallway and open/close locker doors. I am so happy for little kid!

The very best part is that it really confirms for us that all the effort we are putting into biomedical interventions really is working. Talking with Michelle really reinforced that for me. She said that they expect to see a certain degree of growth in kids from summer to summer, but that Michael really exceeded that. The best news of the week!

Fine Motor Skills!

2009-07-23T20:37:00.003-04:00

Tonight Michael and I were playing and he noticed that I had the top two buttons on my shirt undone. He said that they were unbuttoned and asked if he could 'push the buttons through'. This is a kid who does anything to avoid fine motor work! He took less than two minutes to button both buttons. Later, I sneakily undid them again, and he asked to button them again. He was even faster the second time.

I'm not sure where we are getting all the wonderful positives from, but boy am I enjoying them! He is just a happy, relaxed kid this summer. So different from the bundle of anxiety and OCD we had last summer!

Now, if only we could get him to sleep in his own bed for the whole night!

Happy Monday!

2009-07-20T18:10:00.002-04:00

We had a great weekend. My cousin came over with her 3 kids, and Michael played with them really nicely. He interacted and even shared his toys. I was so proud of him! Steve said that when he found out he had visitors, he ran over to go find them. What a difference!

We also got a small table and chairs so we can have picnics on the deck. Michael's been into picnics since they started having them at camp. It is so nice when he brings home GOOD things from camp!

I'm dead tired tonight. Have some work deadlines looming and not enough hours in the day. Have a good night!

Link to Congressional Briefing Summary and Podcast

2009-07-18T12:16:00.002-04:00

Age of Autism has a summary of yesterday's House briefing on the autism epidemic, and a link to the Autism One podcast. It's so encouraging to see the epidemic of autism getting broader coverage in congress.

I am sure Age of Autism will post a list of attendees and the representatives they were there for. If you find your representative on the list, please call and thank them for their participation.

New Beginnings

2009-07-12T11:56:00.002-04:00

I really apologize (again) for being gone for so long. Things here have been really hectic, but they are finally calming down. We have a million new things going on, so a new beginning to the blog seems to be in order.

Michael has been going to summer camp for 3 weeks now. He absolutely loves it. It’s a therapeutic day camp with a 4:1 camper to staff ratio. I couldn’t ask for a better camp, counselors, or activities. They go to a new place 3 days a week, and go swimming twice a week. Every day there is something for him to look forward to.

The change we have seen in Michael since school ended is remarkable. During the school year, he had pretty much stopped reading at home, and had terrible headaches 3 or more times a week. The first day of summer break, Michael started picking up books and reading again. He will even read out loud to me now. I am shocked and thrilled. The best thing though, is that he hasn’t been getting headaches. I think he was getting them from eye strain, trying to focus for such long periods of time at school. Without the stress and headaches, he is a happy, relaxed kid. And, I’m a happy, relaxed mom!

One of the other new things we have started this summer is HANDLE. It is a wonderful, intuitive program that really makes sense for us. Michael enjoys the activities, and he seems to be growing every day. I’ll have to write up a whole HANDLE post when I have more time. But, so far, it’s been a fantastic summer!

2009-05-26T20:01:00.001-04:00

Autism One was fantastic, and I learned so much! Steve and I are still trying to decompress from driving so many hours straight. And, Michael actually missed us, so he's a little more clingy than normal. But, for the first time ever, I got an "I love you too, Mommy!" I think I was beaming for an hour.

We've seen a lot of really great things lately. Michael has actually wanted to go back to therapeutic riding again, and is doing wonderfully. He didn't forget much, and is already back to standing in the stirrups and trotting. Even though he's a little afraid of being so high, he absolutely loves to trot. His instructor can't believe the change in him since last spring when we had to quit.

One of the reaons I haven't been around as much lately is that Steve and I have been trying to get a project off the ground. We started a web site called ASD Parent Exchange. No, our kids don't get to pick out new parents - it's a website devoted to helping parents start and grow their small businesses.

We kicked it off last month at a local autism resource fair. Even though a lot of people thought it was a great idea, we haven't gotten much interest at the web site. So, I guess I'm asking for your opinion. Would you mind taking a look at the site and letting me know if you think it's a worthwhile endeavor? We have so much on our plates I don't want to waste time, but if you think it's a great idea, we'll keep at it.

There might be hope after all!

2009-05-16T10:09:00.002-04:00

I sat down to read Age of Autism this morning and found myself completely stunned by one of the articles. It is truly amazing that so many people with so many different views were able to come together and discuss autism treatment rationally. I can't wait to be able to watch the video! I will post a link here as soon as it's available.

What's happened to my child???

2009-05-13T19:13:00.000-04:00

Something strange has been going on. For the last couple days, Michael has been happy and focused. Today, he's playing appropriately (for a boy) with some bouncy balls in the foyer. We're getting a full narrative of what he's doing. This is not the child we had last week.

For the last few weeks, Michael has been very touchy, emotional, aggressive. We've all been walking on eggshells to keep the peace. Getting him to school in the morning has been a major ordeal, complete with war injuries.

This morning, I had to get up early for a meeting, so I was downstairs getting ready around 6:30 or so. I didn't have to leave until 7:15. By the time my brother-in-law came to 'take over' at 7, Michael was dressed, had his morning capsulets, and was working on breakfast. Absolutely unheard of.

We got a note home from school today with lots of stars and a 'great morning' on it. Again, this is the child who just last week attacked the paraeducator because she had the audacity to try to get him to do some work. Part of today was 'testing' and he got a star for it. Truly, truly amazing.

Steve and I have spent the afternoon analyzing everything we've done this week. Could it be the couple times we've gotten Michael into the sauna and followed up with a bath? Could it be some of the HANDLE exercises we've started? Is the Enhansa working magic? Is he getting more sunlight now that it's spring? Is allergy hell finally waning?

I think that the answer is somewhere in our list of questions, and it's probably a combination of things. Whatever it is, I'm happy. Very, very happy.

Great Spices for Cooking / Grilling

2009-04-25T18:56:00.002-04:00

I had a great experience with a company today. We've been using John Henry's Pecan Rub on our burgers for a long time. Unfortunately, the company we were buying it from went out of business, so we lost our source. I found my way to the company's website and found all sorts of products I wanted to try.

The only bad thing about the website is that it didn't list ingredients. So, I called the number on the contact us page and left a message saying that I was interested in allergy information. John Henry himself called me back within a few hours - on a Saturday! He explained that none of his products have wheat, dairy or soy. But, 3 products have herbs in them that could be related to wheat, so he recommended staying away from Papa Charlies, Texas Chicken Tickler, and another product that had herb in the name. He was so nice!

So, I am guessing that one Steve has a chance to peruse the list of products, we'll be getting some new rubs and marinades in. Just in time for summer grilling season!

Around the World In 80 Days - Free Game!

2009-04-25T18:25:00.002-04:00

Today's game giveaway is a great game for the moms. And potentially for the kids too. It's Around the World in 80 Days, a standard match 3 game but has beautiful graphics and a cute story. If you like free games, this one is definitely a keeper. I even got my mother in law hooked on it.

Sorry for the Hiatus...

2009-04-25T18:19:00.003-04:00

It's been a really, really rough month around here. We had Michael's IEP earlier this week, and a couple appts with a developmental optomotrist. The DO was finally able to identify a problem that we've suspected for several years (Michael just would't cooperate with prior exams) but doesn't think that he's ready for vision therapy to help correct it. Grrr. I know he's right since Michael barely participated in the exam, but it's still frustrating!

Anyway, Michael has convergence insufficiency, which means that his eyes don't work well together, and it makes close work extremely difficult for him. No wonder he doesn't write well, like to read books anymore, and hates working on worksheets at school. So many problems that we thought were behavioral can be tied back to the CI. Now, I don't know how much is the vision problem and how much truly is behavioral, but it's a huge clue.

Once the county has a chance to review the report and suggested accommodations, we'll have to go back for yet another IEP meeting to discuss how to change the IEP to include the new information. It shouldn't be that big of a deal, but it's yet another meeting.

Anyway, we have seen a lot of good things this month. Michael's language is getting more fluent, he's making all sorts of wonderful connections and is just generally sweet and lovable. Of course he's had his moments, but when I look back on the month, the good ones stand out the most.

I have two other posts in mind for today, so I'll be making up for lost time! But, right now Michael and Steve are busy making fudge, so I have some time to write.

Amazingly Clear and Logical Vaccine Interview

2009-04-08T07:40:00.003-04:00

This is an interview with a pediatrician, David Berger for a Florida TV station. It is one of the clearest, most powerful arguments for a safe vaccine schedule that I have ever seen. Please, please watch it! Please encourage anyone considering the 'standard' vaccine schedule to watch it.

Autism Yesterday Video

2009-04-05T23:19:00.002-04:00

This is a wonderful video put out by JB Handley, from Generation Rescue and Age of Autism

"AUTISM YESTERDAY" Autism is Reversible from JB Handley on Vimeo.

Left brain vs Right brain

2009-04-05T21:38:00.001-04:00

Two weeks ago, Michael had a complete meltdown during a CranioSacral Therapy session. It’s very rare for him to have a meltdown like that outside the house or car. As embarrassing as it was, it gave the therapist some insight into how Michael’s brain is working during the process. One of the things she explained to us is that there are times when Michael’s right brain (which is responsible for aggression and agitation) fires uncontrollably, and the left brain can’t get any signals out. She demonstrated that if we can just force the brain to access the left side, he can pull himself out of the meltdown.

For the past two weeks we’ve been asking Michael to do math with us whenever we get the hint that he is ‘on the edge’ of a meltdown. The amazing thing isn’t how well it works, but that Michael seems to understand that it works. There have been a few times when he was getting agitated that he came up to me and asked to play the math game. Or, if I slowed down, he asked for another problem. Why didn’t anyone ever tell us this before?

I’ve generally been able to tell the difference between willful acting out and a meltdown that was beyond his control. Now, I have another powerful tool. If he is willing to do math games, I know it’s a meltdown and he wants it to end as much as I do. If he refuses to even try to access the left brain, I know it’s willful behavior.

We’ve also been seeing some other fantastic behavior the last couple weeks. Mostly, we’ve seen an increase in flexibility and imagination. Michael has been enjoying going to the pool lately. On Friday, it was fairly empty, and he was daring enough to finally try some of the slides. He worked up his courage, and ended up going down all the small slides. (There are two mammoth slides that scare me!) The best part was how he explained it to me when they got home. He was so happy to go down the slide and have Steve catch him at the bottom.

My favorite flexibility part came on Saturday. He had been begging to go back to the pool, and had really good behavior, so we wanted to take him. The problem was that the open hours were very small, and conflicted with other errands that needed to be done. I asked him if it would be OK to skip the pool on Saturday, if he went on Monday instead. I was so shocked when he agreed! It’s so nice to see him understand a schedule change and just go with it. No fussing, no pouting, just talking about Monday. I guess we’re really lucky it’s spring break!

Game Giveaway - Janes Hotel FREE

2009-03-29T12:04:00.001-04:00

Today's game is Jane's Hotel. It gets difficult at the end, but is a pretty fun time management game. Try it, what do you have to lose? Except time and room on your computer...

I'm In Love with Enhansa!

2009-03-28T12:58:00.002-04:00

I never thought I’d be in love with a bright orange capsule – but I am, and it’s the real thing! We have had Michael on Enhansa for well over a month now, and have seen incredible results. But, let me start with a little background information.

Michael has been battling systemic yeast his whole life. We’ve tried Yeast Aid, Diflucan, Ketokenazole, you name it. Each would help for a little while, and then the yeast would come back in force. I had researched the anti-candida diets, but just couldn’t do it. Michael is so skinny to start with; I just couldn’t take away any more carbs.

This calendar year we started off with the Diflucan and then switched to the Ketokenazole. Toward the end of the second prescription, the yeast was under control but I was terrified of what would happen when we stopped taking the medicine. Plus, I was afraid of what damage taking such strong antifungals could cause long term.

I had heard really good things about Enhansa, and was perfectly primed to try it. So, when we started, the yeast was mostly under control, but still there. We started Michael with one 75mg capsule in the morning for a week. We added one capsule a week until we are now at 2 in the morning and 2 at night, for a total dose of 600mg a day.

It’s like we have a whole new child. He was doing great when we started, but his social interaction is really taking off, and his OCD is much better. Right now he and Steve are playing Mario Kart on the wii. They are talking back and forth about the game, strategies for doing better, and unlocking levels. It’s so nice to hear a back and forth conversation that is related to what they are doing together! Add in that he’s sharing and taking turns, and I’m completely over the moon.

Spring is staring and Michael has been asking to go to the park. Last year, he would go on a lot of the equipment, but shied away from a lot of the more challenging tasks. This year, he is doing absolutely everything. He’s still a little intimidated by walking over a mesh bridge that is at least 20 feet off the ground, but he does it. He’s still a little more cautious that most of the other kids, but he’s catching up fast. It’s so wonderful to see.

Even better, he’s starting to interact with some of the younger kids. He generally feels comfortable with children about 2 years younger than him – they tend to be quieter and move a little slower. He’s played on the teeter-totter a few times, and shared some of the equipment that requires sharing. It’s so awesome to watch.

The very best result by far though is that Michael is a much happier child. He smiles more, and laughs a genuine laugh. I was so used to the hyper yeast laugh (other parents of yeasty kids know what I’m talking about) that it was a surprise to hear a genuine, happy laugh. I think he’s feeling better overall, and is less bothered by what’s left of the OCD.

I’m tempted to bump him up one more capsule to 750mg a day, but we haven’t decided yet. For now, we’re holding steady at 600 and seeing a happy, connected child. What more could I ask ?

I do have one footnote to add. Through all of this we’ve been seeing an absolute angel of a CranioSacral therapist. She has worked wonders with Michael both before and during our Enhansa experience. So, I can’t say for sure what is due entirely to the Enhansa, and what to the CranioSacral. I tend the think the two work synergistically, so it’s not a very big footnote.

Another great kids game! FREE!

2009-03-21T09:31:00.003-04:00

Here is a wonderful, FREE, game for little kids and older kids alike. It's a totally nonviolent bubble shooting game called Aqua Bubble II. Have I mentioned how much I like Game GiveAway of the Day?

We have a busy day planned - Cranio Sacral Therapy this morning for Michael and then he wants to go to the park and run around. He's been playing Mario Party 8 on the wii lately, and has decided that some of the wood playground equipment at the park is really Donkey Kong's Treetop Temple. It's very cute, but he can get very impatient!

Some of you know that I've had a lot of distraction in my life lately, but that is has finally taped off some. So, I'm hoping that I'll have more time and energy to devote to Michael, but maybe some extra to update the blog site, and start a new and very exciting project. I'll fill you in as details become availble!

A very important anniversary!

2009-03-19T19:49:00.000-04:00

I realized this week that we hit a major milestone -- Michael has been gf/cf/sf for a whole year now. What a year it's been! He has come so far, and has made tremendous gains in so many areas. I love how connected he is, how he is starting to play games appropriately, and how he is finally asking 'why' questions. We still have a long, long road ahead, but this year it seems much less rocky.

I also wanted to point out that now is the perfect time of year to start the diet. Because Passover is approaching, the Kosher supermarkets are carrying many gluten and casein free foods. I don't understand why, but they are even carrying more soy free foods than normal. It's a great time to stock up! Today, Steve came home with a stash of chocolate chips, various flours, and even a chocolate bar. He said there were some delicious looking cakes that were gf/cf/sf, but way out of our budget. They stayed at the store.

So, if you are thinking about starting the diet, now is a great time to start. There are so many resources to help you, and I love talking about it. If you have any questions or need a cheerleader, just ask me, or leave a comment.

Game Giveaway!

2009-03-15T11:08:00.002-04:00

Wow, a weekend with 2 kid appropriate games! Today's Game Giveway of the Day is Golden Age of Prague. It's a hidden object game that gets progressively harder. I have never been able to finish it, but it is a lot of fun. Not Michael's favorite, but your child might like it!